“I’m hoping the results will change lives in my family for generations to come. ”
“We participated because at the end of the day, we don’t want any more kids getting type one diabetes. ”
“ Clinical trials help us solve really big problems and have an incredible impact on our patient’s future. ”
“ Throughout my clinical trial I was closely monitored. It was reassuring for us to get all that information. ”
“ I think clinical trials and research are part of life in a modern practice. ”
My name is Simon Frost and I have had Type 1 diabetes for more than 25 years and as the parent of two boys (Ted and Matthew) eligible to be screened to establish if they were at higher risk of developing Type 1 diabetes, I found deciding that they could be part of a clinical trial was an easy choice to make. Encouraging my boys to participate was not only about their own health, but the potential to make a contribution to the worldwide search for a cure to this chronic disease.
My mother was a breast cancer survivor for 26 years. It was discovered that she carried the BRCA genetic variation. In women, the gene increases the risk of breast and ovarian cancer. In men, it increases the risk of breast and prostate cancer. When Mum was identified with the variation the familial cancer clinic contacted our family to alert us that we may have an increased risk of cancer.
We found that the gene had been passed down through her family, including to my brother and myself.
I joined a clinical trial because I was referred by my specialist. My cancer — melanoma — had metastasised and spread to my lymph glands, and my doctor thought a clinical trial was the best next step in treatment for me. I had already had radiotherapy, and chemotherapy offered little chance of success for my type of cancer. My specialist knew about this drug trial and recommended I go and talk to the team at Prince of Wales Hospital.
Tom McNamara thinks he was about eight when he was sunburned. “In my younger days my mother would take us to Bronte Beach to see the family. It’s taken all these years for my melanoma to show up.”
Now 75, the former radiographer at Royal Prince Alfred Hospital in Sydney was told last year he had secondary cancer in his lung, with another tumour on his liver.
In Australia, 30 people a day are diagnosed with melanoma, and 1,200 die each year.