Megan and Leila's story

Megan has had type 1 diabetes since she was 4 years old. Her daughter, Leila, has a higher chance of developing diabetes. They took part in a clinical trial that could detect whether Leila was going to develop type 1 diabetes. Watch their story.

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[Meg]

I’m Meg. I'm from Northmead in Western Sydney. I joined the ENDIA study with my daughter Leila. The research is trying to find any environmental factors that trigger in Type 1 diabetes in young kids. I've got Type 1 diabetes. I've had it since I was four years old.

Obviously, my daughter's got a little bit of a higher chance to develop diabetes. They could catch it early on if she's going to develop it or not.

When I first heard about it, I was thinking maybe in a lab with people in white coats and all these gadgets all over Leila, but it's not invasive at all. It's just a simple urine sample, stool sample, questionnaire, and then a blood test for the antibodies. The people involved in the clinical trial are amazing. They are always so caring, and I keep the families involved in what's going on.

If there is any questions that do come up outside of the appointments, they're always there. ENDIA nurses interact with the kids as well to keep them preoccupied from what's actually going on. They love their bubbles. So, always blowing bubbles for the kids at the end of the day. We don't want any more kids getting Type 1 diabetes. It gives me peace of mind as well, knowing that Leila's got no antibodies for developing Type 1 diabetes.

[Voice Narration]

Authorised by the Australian Government, Canberra.

Video type:
Story
Date of official publication:
Description:

I joined the Endia study with my daughter Leila.

The research is trying to find any environmental factors that trigger type 1 diabetes in young kids. I have type 1 diabetes and I have had it since I was 4 years old. Obviously my daughter has a higher chance of developing diabetes. This study could see early on if she’s going to develop type 1 diabetes.

When I first heard about the trial, I thought it would be in a lab with people in white coats and gadgets all over Leila but it’s not invasive at all. It’s just a simple urine sample, stool sample, a questionnaire and then a blood test for antibodies.

The people involved on the clinical trial are amazing. They’re always so caring and they keep the families involved in what’s going on. If there are any questions that come up outside of the appointments, they’re always there.

The Endia nurses are great.  They interact with the kids to keep them preoccupied from what’s actually going on. 

Leila and I have participated in this trial because at the end of the day, we don’t want any more kids getting type 1 diabetes.

Date last updated:
Tags:
  • About clinical trials